We in RA (ACT) are devoted to helping people in Canberra and the region manage the effects of loss of vision. We are, essentially, a volunteer-based self-help group concerned with two main tasks:

  • Ensuring that individuals and their families receive information that provides them with support and referral to specialist organisations so as to learn ways of managing the changing circumstances that will inevitably affect every aspect of their lives, and
  • Raising funds for research into treatments and cures for Retinitis Pigmentosa and a range of other retinal dystrophies.

Retinal Dystrophy is the term used to cover all inherited degenerative eye conditions affecting the light sensitive area of the eye known as the retina. The time of onset and the severity of these conditions vary, but all lead to significant vision loss or blindness. Some dystrophies also involve deafness and metabolic disturbances.

New members are referred to us by ophthalmologists, optometrists, doctors and specialist blindness agencies. When they or family members decide to join RA (ACT), a ‘one off’ payment secures them life membership. Thereafter, members are asked for an annual donation. This helps maintain a small administration budget but also contributes to the national research fund.

We provide new members with information and telephone contact.

We also produce a newsletter three times a year that provides information on local events, research updates and other items likely to be of interest to members.

We have regular social meetings aimed at helping members stay in touch and new members to learn from existing members’ experiences. Some people with failing vision are initially reluctant to seek the services and assistance they need. Our social events are designed to introduce them to others who have been in their situation and can pass on the advice they need. We also have a monthly coffee morning for members.